Take a confidential, voluntary survey to help the Type B Aortic Dissection (TBAD) Collaborative better understand the experience and needs of the aortic dissection community. This survey will help our team of doctors, researchers, and patients develop research to improve treatments, outcomes, and quality of life for people with aortic dissection.
The vEDS Research Collaborative Study is now enrolling!
This is a longitudinal, natural history study of vEDS. Individuals of all ages with molecular confirmation of vascular Ehlers-Danlos Syndrome (genetic testing results or skin biopsy results) are eligible.
Participation requires no travel! Only consent and collection of your medical records and radiology imaging is involved! Learn more by visiting the link below: