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The VEDS Research Collaborative Study is now enrolling!

This is a longitudinal, natural history study of VEDS. Individuals of all ages with molecular confirmation of Vascular Ehlers-Danlos Syndrome (genetic testing results or skin biopsy results) are eligible.

Participation requires no travel! Only consent and collection of your medical records and radiology imaging is involved! Learn more by visiting the link below:

https://thevedsmovement.org/research/veds-collaborative/

Various Studies Seeking Participants

Visit The Marfan Foundation's website for information on additional studies currently recruiting participants. 

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GenTAC Alliance

Division of The Marfan Foundation
22 Manhasset Ave.
Port Washington, NY 11050

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