Basic/ Translational Science Working Group
Working Group Mandate: To facilitate new research partnerships, connections, and scope of research in basic/translational sciences related to genetically-triggered aortic conditions.
Dianna Milewicz (Chair)
Simon Body (Vice Chair)
Aline Verstraeten
Catherine Boileau
Alan Daugherty
Alessandro Della Corte
David Dichek
John Elefteriades
Santhi Ganesh
Mark Lindsay
Bart Loeys
Cheryl Maslen
Juan Miguel Redondo
Lynn Sakai
Mary Sheppard
Patrick Sips
Toru Suzuki
Aline Verstraeten
Hiromi Yanagisawa
Clinical Science Working Group
Working Group Mandate: To facilitate new research partnerships, connections, and scope of research in clinical sciences related to genetically-triggered aortic conditions.
Sherene Shalhub (Chair)
Shaine Morris (Vice Chair)
Adam Beck
Eduardo Bossone
Julie De Backer
Carlo de Vincentiis
Arturo Evangalista
Kathryn Holmes
Elizabeth Jackson
Guillaume Jondeau
Ron Lacro
Scott LeMaire
Rita Milewski
Reed Pyeritz
Wiiliam Ravekes
Mary Roman
Michael Singh
Jonathan Weinsaft
Bo Yang
Business Plan Working Group
Working Group Mandate: To identify and capture additional funding channels for the Alliance to continue its important work of advancing research and treatment of genetically-triggered aortic conditions.
Michael Weamer (Chair)
Joe Coselli (Vice Chair)
Guillaume Jondeau
Josh Beckman
Jim Cavan
Firas Mussa
Jeff Olin
Cherrie Abraham
Gil Bashe
Len Girardi
Cheryl Pegus
Patients, Families, and Clinicians Education and Communication Working Group
Working Group Mandate: To educate and communicate with patients, families, and clinicians about genetically-triggered aortic conditions.
Alan Braverman (Chair)
Eva Kline-Rogers (Vice Chair)
Julie DeBacker
Michael Silberbach
Li Li – Marfan survivor
Eileen Masciale
Loren Hiratszka
Cindy Retterer
Shani Weber
Laura Muino Mosquera
Glen Iannucci
Elizabeth Jackson
Elise Woznicki
Lynn Sanders
Jessica Kushner
Mary Sheppard
Richard Goldenberg
Juan Bowen
Biospecimens and Data Working Group
Working Group Mandate: To facilitate the standardization of data elements and their definitions, and collection and storage of biospecimens, across different registries dealing with aortic conditions.
Siddharth Prakash (Chair)
Kathryn Holmes (Vice Chair)
Melissa Anselmo
Federico Asch
Andrea Ballotta
Marion Hofmann-Bowman
Cheryl Maslen
Sherene Shalhub
Jason Sperling
Toru Suzuki
Elise Woznicki
Bo Yang
