Basic/ Translational Science Working Group
Working Group Mandate: To facilitate new research partnerships, connections, and scope of research in basic/translational sciences related to genetically-triggered aortic conditions.
Dianna Milewicz (Chair)
Simon Body (Vice Chair)
Siddarth Prakesh
Catherine Boileau
Lynn Sakai
Vidu Garg
Cheryl Maslen
Santhi Ganesh
John Elefteriades
Mary Sheppard
Marjolijn Renard
Toru Suzuki
Patrick Sips
Alan Daugherty
Mark Lindsay
Juan Miguel Redondo
Hiromi Yanagisawa
David Dichek
George Tellides
Hector Michelena
Evaldas Girdauskas
Alessandro Della Corte
Clinical Science Working Group
Working Group Mandate: To facilitate new research partnerships, connections, and scope of research in clinical sciences related to genetically-triggered aortic conditions.
Mary Roman (Chair)
Sherene Shalhub (Vice Chair)
Scott LeMaire
Rita Milewski
Eduardo Bossone
Adam Beck
Shaine Morris
Elizabeth Jackson
Bo Yang
Julie De Backer
Guillaume Jondeau
Kathryn Holmes
Federico Asch
Jonathan Weinsaft
Bill Ravekes
Arturo Evangalista
Reed Pyeritz
Carlo de Vincentiis
Ron Lacro
Business Plan Working Group
Working Group Mandate: To identify and capture additional funding channels for the Alliance to continue its important work of advancing research and treatment of genetically-triggered aortic conditions.
Michael Weamer (Chair)
Joe Coselli (Vice Chair)
Guillaume Jondeau
Josh Beckman
Jim Cavan
Firas Mussa
Jeff Olin
Cherrie Abraham
Gil Bashe
Len Girardi
Cheryl Pegus
Patients, Families, and Clinicians Education and Communication Working Group
Working Group Mandate: To educate and communicate with patients, families, and clinicians about genetically-triggered aortic conditions.
Alan Braverman (Chair)
Eva Kline-Rogers (Vice Chair)
Julie DeBacker
Michael Silberbach
Li Li – Marfan survivor
Eileen Masciale
Loren Hiratszka
Cindy Retterer
Lara Bloom
Denver Sallee
Elizabeth Jackson
Elise Woznicki
Lynn Sanders
Jessica Kushner
Mary Sheppard
Richard Goldenberg
Juan Bowen
Biospecimens and Data Working Group
Working Group Mandate: To facilitate the standardization of data elements and their definitions, and collection and storage of biospecimens, across different registries dealing with aortic conditions.
Siddharth Prakash (Chair)
Cheryl Maslen (Vice Chair)
Elise Woznicki
Barbara Kroner
Sherene Shalhub
Toru Suzuki
Andrea Ballotta
Lynn Sakai
Jason Sperling
Federico Asch
Bo Yang
Kathryn Holmes
Marion Hofmann
Melissa Anselmo
