Introducing the GenTAC Alliance
The GenTAC Alliance is a community of stakeholders committed to advancing our understanding of genetic thoracic aortic diseases and their treatment.
The Alliance builds upon the successes of the GenTAC Registry, which enrolled and followed participants from 2006 to 2016 and seeks to involve a much wider group of stakeholders and be more expansive in scope.
The goals of the GenTAC Alliance are to advance basic, translational and clinical research; educate and support patients, families, and clinicians; and coordinate, facilitate, and encourage the use of biospecimens and data across registries.
The GenTAC Alliance is powered by The Marfan Foundation.
COVID-19 Announcements
In light of the current public health crisis due to COVID-19, the GenTAC Alliance is committed to connecting the Genetic Thoracic Aortic disease community to the most up to date research and information. Please see our COVID-19 updates page for information and guidance.
GenTAC COVID-19 GuidanceCOVID-19 Vaccine Q & A from Dr. Kim Eagle
Is the COVID vaccine recommended for people with Marfan, Loeys-Dietz, and VEDS? Which vaccine should they take? Are the side effects worse if you have one of these conditions? If someone with Marfan or a related condition gets COVID, are the symptoms worse? Dr. Kim Eagle, Chair of the GenTAC Alliance, answers the most common questions we are asked about COVID and the COVID vaccines.
Eagle’s Eye View COVID-19 Tip of the Week
Dr. Kim Eagle, GenTAC Chair, provides a weekly tip for clinicians on the front lines of the COVID-19 pandemic on behalf of the American College of Cardiology.
Become Part of Our Community
The Alliance welcomes clinicians, researchers, and advocacy organizations to join our community of stakeholders in promoting and enhancing collaboration in education, research, and care with regard to genetically-triggered thoracic aortic disease and related cardiac and non-cardiac complications.
Learn More
Aortic Disease Awareness Week 2020: September 19-26
This year, Aortic Disease Awareness Week was expanded from Aortic Disease Awareness Day to put an enhanced focus on this potentially life-threatening condition. While the passion of the medical community and patient community remains the same, the initiative had a different look this year due to the pandemic. Click below to view the full article.
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Recent GenTAC Announcements
In October 2020, we held the GenTAC Aortic Summit 2020, a virtual scientific meeting. Recordings of the sessions, which are geared for clinicians and researchers are now available. Additionally, we presented the highlights for the patient community at a webinar in November 2020. The recording is also available.
News & Events
News & Events
Check here for updates on the Alliance and global events related to thoracic aortic disease.
Publications
Find the latest research regarding thoracic aortic disease.
Registries
Learn about GenTAC related patient registries and their work.