The GenTAC Alliance is a community of stakeholders committed to advancing our understanding of genetic thoracic aortic diseases and their treatment.
The Alliance builds upon the successes of the GenTAC Registry, which enrolled and followed participants from 2006 to 2016 and seeks to involve a much wider group of stakeholders and be more expansive in scope.
The goals of the GenTAC Alliance are to advance basic, translational and clinical research; educate and support patients, families, and clinicians; and coordinate, facilitate, and encourage the use of biospecimens and data across registries.
The Alliance welcomes patients, families, clinicians, researchers, and advocacy organizations to join our community of stakeholders in promoting and enhancing collaboration in education, research, and care with regard to genetically-triggered thoracic aortic disease and related cardiac and non-cardiac complications.Learn More
Informed by members of the Patients, Families, and Clinicians Working Group, we work to connect stakeholders with the most up-to-date and accurate information regarding thoracic aortic disease.Explore Family Resources
Click to learn more about a new collaborative that aims to engage patients with type B aortic dissections (TBAD) as partners in patient-centered outcomes research. Patients are invited to participate in a confidential survey improve understanding of the TBAD community their needs. From there, the team will determine the most important research items to pursue next in Type B aortic dissection.
Visit the Announcements page to learn more and to link to the survey!Announcements
Check here for updates on the Alliance and global events related to thoracic aortic disease.
Find the latest research regarding thoracic aortic disease.
Learn about GenTAC related patient registries and their work.