The GenTAC Alliance’s Patients, Families, & Clinicians Education Working Group presented a webinar on Advances in the Treatment of Aortic Dissection on May 12, 2021. The featured speakers were Dr. Marc Moon and Dr. Westley Ohman, from Washington University School of Medicine and Barnes Jewish Hospital.VIEW WEBINAR
GenTAC Chair Dr. Kim Eagle is one of the featured speakers in the next webinar from The Marfan Foundation that focuses on a Covid-19 update for the Marfan, Loeys-Dietz, and VEDS community. It will be held on Monday, April 26, 7 pm Eastern. Dr. Eagle will be joined by Senior White House Advisor Dr. Marcella Nunez-Smith, who is Chair of the DHHS COVID-19 Health Equity Task Force, and pulmonologist Dr. Enid Neptune, from Johns Hopkins.
Registration (free) is required. Questions may be submitted in advance during registration.REGISTER
In this webinar, Dr. Hal Dietz (Johns Hopkins Medicine) discusses the impact of genetic background on the vascular phenotype in mouse models of Marfan syndrome and Vascular Ehlers-Danlos syndrome.View Webinar
In this webinar, Dr. Siddharth Prakash (UTHealth) introduces the cloud sharing platform, Trice, and explains how users can leverage Trice to exchange images, and conduct collaborative projects more quickly and easily across the GenTAC Alliance.
After watching the webinar, we strongly urge you to participate in the following survey regarding the possible use of Trice at your institution.
Please complete it by March 22, so that we may gauge interest in its use.View Webinar
This year, Aortic Disease Awareness Week was expanded from Aortic Disease Awareness Day to put an enhanced focus on this potentially life-threatening condition. While the passion of the medical community and patient community remains the same, the initiative had a different look this year due to the pandemic. Click to view the full article.
Where: Virtual (everywhere)
When: On demand presentations being on September 29, 2020. Live sessions are on October 8 and 10, 2020
Registration is now open for the GenTAC Aortic Summit 2020, one of the premier meetings in the world focused on sharing knowledge and advancing research on genetic aortic disease. It is open to scientists, clinicians, institutions, organizations, and the general public interested in genetic aortic conditions. This year’s event will be virtual, with presentations on-demand beginning September 29 and live discussions on October 8 and 10.GenTAC Aortic Summit 2020
The Marfan Foundation and VASCERN, the European Reference Network, are pleased to announce that registration is now open for the first-ever E3 International Summit: Educating, Empowering, and Enriching Our Community. The online event will provide unique access to presentations and live question and answer sessions on Marfan, Loeys-Dietz, VEDS (vascular Ehlers-Danlos), Stickler syndrome, and other aortic conditions. Summit registration is free, but is required to participate in sessions. Several members of the GenTAC Alliance are featured speakers.
Over the course of three weeks – from August 25 through September 12 – the E3 Summit features nearly 70 presentations in six languages: English, Spanish, Italian, French, German, and Dutch. Presentations will include live and pre-recorded talks, along with live question and answer periods with the experts. Presentations commence at 12 noon Eastern Time and 7:30 pm Eastern Time to accommodate people in most parts of the world. The sessions are geared for patients and families; however, healthcare professionals are invited to participate as well.Click for more information and to register
We invite you to stay connected to the GenTAC Alliance. There is no cost. We encourage anyone interested in advancing research, education, and treatment of genetically-inherited thoracic aortic conditions to become part of our global community.