News & Events

View GenTAC Announcements

E3 International Summit: Educating, Empowering, and Enriching Our Community

The Marfan Foundation and VASCERN, the European Reference Network, are pleased to announce that registration is now open for the first-ever E³ International Summit: Educating, Empowering, and Enriching Our Community. The online event will provide unique access to presentations and live question and answer sessions on Marfan, Loeys-Dietz, VEDS (vascular Ehlers-Danlos), Stickler syndrome, and other aortic conditions. Summit registration is free, but is required to participate in sessions. Several members of the GenTAC Alliance are featured speakers.

Over the course of three weeks – from August 25 through September 12 – the E³ Summit features nearly 70 presentations in six languages: English, Spanish, Italian, French, German, and Dutch. Presentations will include live and pre-recorded talks, along with live question and answer periods with the experts. Presentations commence at 12 noon Eastern Time and 7:30 pm Eastern Time to accommodate people in most parts of the world. The sessions are geared for patients and families; however, healthcare professionals are invited to participate as well.

2020 GenTAC Aortic Summit

October 10-11, 2020, Ann Arbor, MI

Please join in our efforts to share current knowledge of the scientific underpinnings of Genetic Aortic Disease; to review current best practices related to diagnosis and treatment and to foster scientific and educational exchange between scientists, clinicians, institutions, organizations, and the general public interested in genetic aortic conditions.

Since the last Summit, our Working Groups members have continued in their commitment to advancing research, education, and treatment of heritable aortic diseases. We are looking forward to seeing you all there and sharing our work!

Click here to view Summit page