Aortic Disease Awareness Week 2020: September 19-26
This year, Aortic Disease Awareness Week was expanded from Aortic Disease Awareness Day to put an enhanced focus on this potentially life-threatening condition. While the passion of the medical community and patient community remains the same, the initiative had a different look this year due to the pandemic. Click to view the full article.
2020 GenTAC Aortic Summit
Where: Virtual (everywhere)
When: On demand presentations being on September 29, 2020. Live sessions are on October 8 and 10, 2020
Registration is now open for the GenTAC Aortic Summit 2020, one of the premier meetings in the world focused on sharing knowledge and advancing research on genetic aortic disease. It is open to scientists, clinicians, institutions, organizations, and the general public interested in genetic aortic conditions. This year’s event will be virtual, with presentations on-demand beginning September 29 and live discussions on October 8 and 10.
E3 International Summit: Educating, Empowering, and Enriching Our Community
The Marfan Foundation and VASCERN, the European Reference Network, are pleased to announce that registration is now open for the first-ever E3 International Summit: Educating, Empowering, and Enriching Our Community. The online event will provide unique access to presentations and live question and answer sessions on Marfan, Loeys-Dietz, VEDS (vascular Ehlers-Danlos), Stickler syndrome, and other aortic conditions. Summit registration is free, but is required to participate in sessions. Several members of the GenTAC Alliance are featured speakers.
Over the course of three weeks – from August 25 through September 12 – the E3 Summit features nearly 70 presentations in six languages: English, Spanish, Italian, French, German, and Dutch. Presentations will include live and pre-recorded talks, along with live question and answer periods with the experts. Presentations commence at 12 noon Eastern Time and 7:30 pm Eastern Time to accommodate people in most parts of the world.The sessions are geared for patients and families; however, healthcare professionals are invited to participate as well.
Become part of our global network of researchers, clinicians, patients and family members, patient advocates, donors, and others committed to advancing research, education, and treatment of heritable aortic diseases.