The GenTAC Alliance is a community of stakeholders committed to advancing our understanding of genetic thoracic aortic diseases and their treatment.
The Alliance builds upon the successes of the GenTAC Registry, which enrolled and followed participants from 2006 to 2016 and seeks to involve a much wider group of stakeholders and be more expansive in scope.
The goals of the GenTAC Alliance are to advance basic, translational and clinical research; educate and support patients, families, and clinicians; and coordinate, facilitate, and encourage the use of biospecimens and data across registries.
The GenTAC Alliance is powered by The Marfan Foundation.
We are committed to bringing you the latest information on COVID-19, specifically for the genetic thoracic aortic disease community.GenTAC COVID-19 Guidance
Dr. Kim Eagle addresses the latest in the fight against COVID-19 with specific recommendations for the genetic aortic disease community. This included vaccines for children, booster shots, variants, and more.
As COVID-19 continues to impact our society, members of the Marfan, LDS, and VEDS community have new questions about the virus and the vaccines. In this video, Dr. Kim Eagle addresses the most common questions from these communities.
Dr. Kim Eagle, GenTAC Chair, provides a monthly tip for clinicians on the front lines of the COVID-19 pandemic on behalf of the American College of Cardiology.
Is the COVID vaccine recommended for people with Marfan, Loeys-Dietz, and VEDS? Which vaccine should they take? Are the side effects worse if you have one of these conditions? If someone with Marfan or a related condition gets COVID, are the symptoms worse? Dr. Kim Eagle, Chair of the GenTAC Alliance, answers the most common questions we are asked about COVID and the COVID vaccines.
The Alliance welcomes clinicians, researchers, and advocacy organizations to join our community of stakeholders in promoting and enhancing collaboration in education, research, and care with regard to genetically-triggered thoracic aortic disease and related cardiac and non-cardiac complications.Learn More
In October 2020, we held the GenTAC Aortic Summit 2020, a virtual scientific meeting. Recordings of the sessions, which are geared for clinicians and researchers are now available. Additionally, we presented the highlights for the patient community at a webinar in November 2020. The recording is also available.News & Events
Check here for updates on the Alliance and global events related to thoracic aortic disease.
Find the latest research regarding thoracic aortic disease.
Learn about GenTAC related patient registries and their work.